Keynote Speaker: 2017 Sjogrens National Patient Conference

2017 Sjogrens National Patient Conference

I am thrilled that the Sjogrens Syndrome Foundation has asked me to be the keynote speaker at the 2017 Sjogrens National Patient Conference.  I spoke during the Awards dinner at the Seattle conference last year, and I am honored to speak again to our East Coast Sjogrens peeps.

Are you attending the event?  The conference is March 31st-April 1st in the Philadelphia/Cherry Hill area. I’d also like your input…

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My Rituxan and Sjogrens Journey … Is it worth it?

SjogrensLife - Rituxan and Sjogrens

On November 7th my Rheumy called me to task and suggested I was in denial about the severity of my Sjogrens disease level.  In fact, she challenged me with an email stating that the “long-term ostrich path is rocky” for the progression of the disease and further organ damage.  If you read my last post on grief, you already know I was in a major relapse. Clearly,  it was time to pull my head out of the sand and move to a more aggressive form of treatment. Last year we had discussed biologics as the next step, so I knew that it was time to begin my Rituxan and Sjogrens journey.

Before I agreed to move forward, I needed to have an in-depth drug conversation with my Rheumy and discuss the treatment experience with other patients. I had real anxiety about the treatment because once it’s in you, it is in you for months. To cut to the chase, I had my first Rituxan infusion on December 8th and my second on December 20th.

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