Last Friday and Saturday I was in Virginia at the Sjögrens Foundation May board meeting. The Board of Directors comes together for our live meetings every May and December (with conference calls throughout the year). The Board is comprised of healthcare professionals in a variety of disciplines (Rheumies, Ocular, Oral, Researchers), a disability attorney, caregivers of patients, and patients. The amazing staff of the Foundation joins for much of our meeting to present achievements and challenges and to discuss goals.
The 2017 spring meeting was particularly rewarding and I’m honored to be a member of the Board representing patients! In fact, it was so impressive that I want to share what the foundation has accomplished for us (the patient).
Continue reading “Sjögrens Foundation May Board Meeting — Impressive!”
I am thrilled that the Sjogrens Syndrome Foundation has asked me to be the keynote speaker at the 2017 Sjogrens National Patient Conference. I spoke during the Awards dinner at the Seattle conference last year, and I am honored to speak again to our East Coast Sjogrens peeps.
Are you attending the event? The conference is March 31st-April 1st in the Philadelphia/Cherry Hill area. I’d also like your input…
Continue reading “Keynote Speaker: 2017 Sjogrens National Patient Conference”
I am pleased to be speaking at this year’s National Patient Conference produced by the Sjögren’s Syndrome Foundation. My keynote address will be Friday April 8, 2016 at 6:00pm. I hope you will join us, along with 400 or so other Sjögrens patients, to learn more about our Autoimmune disease and how we can live our best lives.
My speech is titled:
My Sjögrens Life
Relapse to Reinvention — Navigating the Changing Stages of Living with an Autoimmune Disease.
I will also post parts of the speech on this site, just in case you miss it. But I hope to see you at the Sjögrens National Patient Conference 2016!