Determining the best Sjögrens Syndrome products to use for dry eye, dry mouth, (and other challenges) is such a personal process. We all have varying degrees of challenges and different products work better for some people than others. But asking each other “What are your favorite products” is still one of the most common conversations I have with other patients. You never know when someone has tried something new that works for them and could also work for you!
This post is about the best products that work for me. I have focused mainly on some supplements and items for dryness. Addressing pain and fatigue will be a different post.
Take a look and see if some of these ideas might help you. And if you have tried products that you like even more, please do comment and let us all know about them!
Best Sjögrens Syndrome Products My System
I take prescription medications and occasional NSAIDs to give my system the best fighting chance against inflammation and Sjögrens. The other supplements I take that I believe truly help are:
Omega-3 Fish Oil. I take a lot of fish oil every day; about 5,000 MG. It makes a difference in my inflammation and my eye dryness. I buy the liquid by Nordic Naturals that has a slight lemon flavor or Wiley’s Finest (also lemon-flavored). I pour this is my morning protein shake with a banana and I don’t even know it’s there! To get that much fish oil in pills would be too many big pills a day for me (on top of all of my other meds).
Turmeric. There are some great studies on turmeric as an anti-inflammatory so I use it in cooking and will make a paste to put into my morning shake. I tend to eat about 1/2 teaspoon to 1 teaspoon a day. I love Indian food, so I often put it in vegetables, soups, and chicken dishes. You will want to read up on tumeric (try Arthritis.org) to see what dosage may work for you or if you need to be concerned with the potential blood-thinning properties of tumeric (at high doses).
Probiotics. I take probiotics for my gut every day. I tend to get multi-strain probiotics at high levels since I do have issues with my gut due to Sjögrens. There is some discussion and research about the relationship of gut health and mood (such as depression), so I like the idea that I could be doing more for myself than just healing my gut.
Magnesium Fizz Powder. I have this “tea” every night before bedtime. The Magnesium relaxes my muscles, helps me sleep, and aids in constipation or mobility issues the next day. CALM is a popular brand and I use Pure Ionic Fizz. There are different flavors (or no flavor) and I prefer the orange.
Best Sjögrens Syndrome Products My Dry Eyes
Systane Ultra Vials. These are the best eye drops for me. I have tried others but I keep coming back to these. Eye drops are so expensive, that I tend not to venture from these.
Systane Ointment. The ointment is too thick to use in my eyes and it actually doesn’t feel good. However, I do use it at the corners of my eyes. When I’m having particularly bad eye days, the corners of my eyes get very irritated and the ointment helps (especially in winter).
Warm compresses. These help sooth my eyes at night after a long day of computer work.
Humidifier. I use a humidifier every night and in my office during the day if it’s a particularly dry day. A mini humidifier sits in my car for long drives. This also helps my nose and mouth.
Best Sjögrens Syndrome Products My Dry Mouth
Act Toothpaste and Mouthwash. I know most people use Biotene, but I really like the Act products better. Lately, the toothpaste has been more difficult to find, but I keep trying. Amazon has options, but they can be more pricey .
Spry Mints and Gum. I LOVE the berry mints! This product is used more than most products for me because I often place one inside my cheek during the day and it melts slowly and evenly. I’m not a big gum-chewer, but the Spry gum is pretty good as well.
Xylimelts by Oracoat. I use the mint-free version at night and love them. The mint is overwhelming for me. I use two on either side of my mouth (one on top and one on bottom). They can create a bit of a thicker saliva so I don’t use them much during the day (more difficult to speak with than the Spry mint), but because they stick to my teeth, they seem safer than sleeping with Spry mints.
Burts Bees “chapstick” or CARMEX at night. These products keep my lips moist and stay put for a decent amount of time.
Monistat Nystatin cream. Why, you wonder, do I have this under oral care? I often get angular cheilitis at the corners of my mouth and sleeping with some Monistat cream on them helps heal them. I no longer get thrush much since I suck on Xylitol all day, but some does seem to gather in the corners of my mouth.
MI Paste Plus. I use this paste at night for extra enamel protection and flouride. I slick some over my teeth and it sits there all night. It also has some moisturizing benefit. You can get this from an online store called DentaMart or from your dentist. I like the melon and vanilla flavors because they are very mild.
Best Sjögrens Syndrome Products My Dry Nose
AYR nasal gel. This gel is the safest to use because it does not have petroleum. But sometimes it does not have the longevity I need and sometimes the slight odor bothers me. But it is the safest choice for a nasal lubricant. I’m sure there are others, but I have not used them. The key is to look for products without petroleum (apparently, we might breathe it into our lungs and cause damage).
Bacitracin. When I need extra lubrication or when I have nasal sores that need some additional help, I will use bacitracin. This kills any issues I’m having and lubricates for longer. An ENT suggested this to me as he was more concerned about infection issues than breathing in petroleum product (for me). You will need to discuss with your ENT or make your own choice.
Best Sjögrens Syndrome Products My Dry Vagina
Monistat Nystatin cream. I do use nystatin cream for the yeast infections and sometimes just as a labia moisturizer if I feel like a yeast infection might be coming. I now prefer using the cream over the vaginal suppository because there is more relief with the cream due to dryness.
Coconut Oil- Virgin. I love coconut oil for many things! Use the whole coconut oil (not fractionated) as it has better moisturizing properties. I cook with it and will use it as a body lotion, but my favorite use is for a vaginal moisturizer or lubricant. It is a wonderful product to use for comfortable sex. It is also cost-effective and all natural. I really like Dr Bronner’s but Trader Joe’s has a decent product as well (and comes in single packages good for traveling or keeping bedside).
Best Sjögrens Syndrome Products My Dry Skin
I use Alba moisturizing butter for my skin. I love the Kukui Nut fragrance, but I know fragrances are an issue for some people. There are many options to help with dry skin and I”m sure you’ve found your favorites!
I hope you have learned about a couple of products or ideas to try for yourself. And as I said at the beginning, if you have products you just LOVE, please share them with us!
I’d also like to take a moment to say Happy World Sjögren’s Day today, July 23rd. Today is a good day to make a donation to the Sjögrens Foundation. If you’d like to read more about what we accomplished at our last Board of Director’s meeting, read my May post.